Charity & advocacy

Charity & advocacy

Maryland governor proclaims June 11 is KBG syndrome awareness day

By CONTRIBUTOR

6 June 2022

Charity & advocacy

Let’s Play Fair—Disability Charity Scope launches accessible play campaign which demands that every child has an equal right to play

By CONTRIBUTOR

3 June 2022

Charity & advocacy

Rare Diseases Organization Nepal holds inaugural meeting to formalise its mission, vision, values and main objectives

By CONTRIBUTOR

23 May 2022

Charity & advocacy

The Vascular Birthmarks Foundation, Dr. Giacomo Colletti, Laserplast, and Candela collaborate to provide pro bono laser treatments

By CONTRIBUTOR

10 March 2022

Charity & advocacy

Living with muscular dystrophy in Nepal

By CONTRIBUTOR

13 December 2021

Charity & advocacy

A new UK charity launches to support those impacted by Glut1DS

By CONTRIBUTOR

12 November 2021

Charity & advocacy

October is CMT awareness month in the UK

By CONTRIBUTOR

22 October 2021

Charity & advocacy

Applications open for Duchenne Patient Academy 2021

By CONTRIBUTOR

18 October 2021

Charity & advocacy

Celebrating a year of mental health support for men affected by rare conditions!

By CONTRIBUTOR

30 June 2021

Charity & advocacy

Why care for carers?

By CONTRIBUTOR

31 May 2021

Charity & advocacy

My journey with multiple sclerosis and advocacy

By CONTRIBUTOR

28 May 2021

Charity & advocacy

Personal circumstances lead the way to a passionate career in nephrology research

By CONTRIBUTOR

11 October 2020

Charity & advocacy

PTC Therapeutics’ 2020 STRIVE awards for Duchenne muscular dystrophy recognise four patient advocacy organisations

By CONTRIBUTOR

30 September 2020

Charity & advocacy

Scottish based liver charity PBC foundation celebrates success of its first global online event

By CONTRIBUTOR

29 September 2020

Charity & advocacy

CMT Research Foundation fighting to shorten the time to diagnosis and put CMT on the radar of pharma

By CONTRIBUTOR

24 September 2020

Charity & advocacy

A race against time

By CONTRIBUTOR

18 August 2020

Charity & advocacy

The Albinism Fellowship UK and Ireland are proud to support a campaign to end discrimination within international blind sport

By CONTRIBUTOR

5 August 2020

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